Tags » Lupus

Turn the Other Cheek.... If You're Able To

“I do not feel like I have the courage for this journey, but I have Jesus—and He will provide. He has given me so much to be grateful for, and that gratitude, that wondering over His love, will cover us all.

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Lupus

Wrong Prescription For Me

I ended up with the oddest prescription I’ve ever received during my latest visit to my specialist.  He pulled out his magical pad of paper, made some odd scratching a and told me to consider filling it sooner rather than later. 220 more words

How Age Affects Chronic Illness & Injuries & The Ability to Find Your "New Reality"

At the age of 57, I never thought I would be in the lousy shape I am in now. I figured I would be enjoying my later years with my husband,doing some traveling, riding my horse, just enjoying life with a few aches & pains normal for my age, then  I woke up from that dream. 722 more words

Chronic Illness

Pain

Pain.

This is a particularly difficult subject to talk about because I think it’s the most difficult part to understand about lupus. But since I am trying through this blog to get you into the mind of a lupus patient, this is something you need to know. 1,038 more words

Disease

And the winner is… Benlysta

Winner? Sure, we’ll call it that.

I made my decision and had my first Belysta infusion yesterday. Let the journey begin. The actual infusion wasn’t bad at all. 153 more words

Lupus

Be Our Guest: An Ode To People Who Just Don't Get It

If you don’t have a chronic illness, you Will. Not. Understand.

That’s not to say that people don’t care or that they aren’t trying their hardest to understand what we’re experiencing–it’s just that even the most well-meaning people are just incapable of fully grasping what it’s like to live with a really mean, unpredictable roommate that you share a body with instead of a house. 798 more words

Spoonie

#LupusStrong

Hello, my name is Jazmin Leader. I am 25 years old, a mother of 2 children, and wife to Jason Leader. February 28, 2015 I was diagnosed with SLE, Lupus. 1,014 more words

#mylifeasaLeader