Tags » Digeorge Syndrome

22Q at the Zoo

This past Sunday, my family and I joined hundreds of others all across the globe in raising

awareness for 22Q!

It is so dear to our hearts because our oldest daughter, Caitlyn has 22Q…also known as… 324 more words


What's the Deal with Mae Mae?

Listening to: Elvis (Costello)

Reading: A million pamphlets about genetics

Writing about: Allyson Mae

A lot  of you know that my daughter Allyson had a procedure done in Jacksonville last week. 516 more words

The Phone Call That Changed Our Lives Forever

It was one of those first days of summer. The weather was perfect. Cool in the morning, but warm enough for the kids to jump in the pool by afternoon. 1,350 more words

Saving Baby Lawrence

There are few things more innocent, more perfect, more beautiful, than watching a baby turn because they recognize the sound of their parent’s voice.  Thinking back on those moments with my own boys brings me to tears.   1,224 more words


A New Normal

I don’t remember the date but I sure remember the day!

I was sitting at China Bell eating lunch with my grandma when my phone rang. 1,339 more words