Tags » Cystic Fibrosis

The UpBeat: Still here, still trying to help move the CF 'expiry date' forward

Max McGuire

The day I was born, I was baptized immediately and five hours later was read my death rites. After being born seemingly healthy, I suddenly turned blue due to a diaphragmatic hernia, an occurrence that came with an 80-per-cent chance of death. 685 more words

Local News

Chilean girl Valentina Maureira, 14, in euthanasia plea

http://www.bbc.com/news/world-latin-america-31648646

A 14-year-old Chilean girl who suffers from cystic fibrosis has made an emotional plea to be allowed to die.

Valentina Maureira uploaded a video to her Facebook page on Sunday from her hospital bed. 86 more words

Daily News

Why do people with Cystic fibrosis need extra salt?

It’s that time of year again, the suns out, we’re lathered with sunscreen, craving ice lollies and my 2 year old son has to have liquid salt twice a day. 613 more words

Cystic Fibrosis

Clinical trial success for Cystic Fibrosis gene therapy: built on animal research

This morning the Cystic Fibrosis Gene Therapy Consortium (GTC) announced the results of clinical trial in 140 patients with cystic fibrosis, which demonstrate the potential for gene therapy to slow – and potentially halt – the decline of lung function in people with the disorder. 1,207 more words

News

What will you do today?

This is a post I wrote on Sunday 21st February, 2010. It always brings what is truly important to the forefront of my mind.

For just over an hour yesterday, I thought I was having a stroke. 520 more words

Cystic Fibrosis

CYSTIC FIBROSIS HOPE AS NEW GENE THERAPY IMPROVES CONDITION

Ten thousand people suffering from cystic fibrosis have been offered new hope after a gene therapy was shown to reverse the condition in some cases. The therapy, which was described by health experts as ‘life-changing’ is likely to be available within the next five years following a landmark trial. 430 more words

News

FDA approves Orkambi

Orkambi, a New Cystic Fibrosis Drug, Wins F.D.A. Approval

By ANDREW POLLACK
JULY 2, 2015

nytimes.com
A new drug for people with the most common genetic type of cystic fibrosis won approval from the Food and Drug Administration on Thursday. 318 more words

Cystic Fibrosis