Tags » Cystic Fibrosis

Week 8 ......miles, meals and a massageĀ 

so a big things happend this week we changed my diet eating different times and the snd food types together. it wasn’t filled with bread milk and all the naughty stuff. 1,586 more words


A Bittersweet Day

This day is somewhat bittersweet. Sweet in a sense that 45 years ago I gave birth to a beautiful baby girl. Bitter, because I don’t have her anymore. 381 more words



“I am slow, I have fought my little voice, and I have won.”

I’mĀ coming off a lousy night of editing into the wee hours. I’m drinking my usual glass of low hanging fruit (world’s greatest name for cheap wine) and peeking at margarine, when i see the pending quote above. 780 more words


Wednesday, March 25, 2015: Doctor's Updates

On Tuesday, Mom and her father (my grandfather, “Pop”) took me to my very first pulmonary appointment since leaving Children’s on 16 March 2015. All in all, the appointment took a little over two hours and I will have one of these every week for the first 3 months which puts these on me and my parent’s calendars until mid-June I guess. 256 more words

Bound By A Curse

Never deserved

Never of choice

She was locked in a Tower

No power, no voice

All she had was a window

A view from above… 427 more words

Cystic Fibrosis

Finally some Relief


6 am nurse little man

7 am everyone up get ready to go

8 am out the door (car ride consisted struggle to remain cal, time in the word, prayer, quiet peace) 691 more words