Tags » Congenital Heart Defect

Community Rallies Around Parents After Queens Girl With Congenital Heart Defect Dies

NEW YORK (CBSNewYork) — The Queens community of Howard Beach had been rooting for little Valentina Allen’s recovery – but she didn’t make it, and now the neighborhood is rallying around her grieving parents. 441 more words

News

Talking Through

I don’t know if this happens to anyone else, or maybe it’s just me due to special circumstances, but there are occasional moments that bring back early memories of this heart journey.   1,140 more words

HLHS

The Exaustion of being Brave

So here is the hard truth, the one that I think sometimes people don’t say. Being brave, having miracle moments, beating the odds, overcoming a traumatic situation are quite possibly the most exhausting moments of your life…ahem…I’m exhausted. 707 more words

Congenital Heart Defect

Words

“Every book you’ve ever read is just the same 26 letters in a different combination. N.N”

I always had a way with words, I was never good at maths or P.E, I say P.E because I was actually alright at science. 616 more words

This One's For The Mamas

It’s Mother’s Day!  I wanted to spend a moment today and send a special shout-out to the Heart Moms out there.  You’re our partners in this heart battle, you brought our little heroes into this world.   301 more words

HLHS

Back At It

Hey friends!  For those of you who follow this blog regularly, you’ll notice it’s been a bit since I’ve posted.  I took a bit of a break and it felt nice to let life happen.   261 more words

HLHS

Pumped Full of Joy

“Though you have not seen him, you love him; and even though you do not see him now, you believe in him and are filled with an inexpressible and glorious joy.” – 1 Peter 1:8… 313 more words

God