Tags » Congenital Heart Defect

Dear Phlebotomists...

Heart parents, you know this scene: you’re in the hospital with your little one – maybe it’s post-surgery or an admission for something else.  Either way, your child has been fussy or in pain and sleep has been really hard to come by.   1,194 more words


Batteries not included

So, I went for my pacemaker check yesterday and ended up staying in hospital overnight!

It happened (vaguely) like this:

I went to the pacing clinic as usual and a nice man started my pacing check, and within a couple of minutes asked me, ‘how have you been feeling recently?’ ‘Very tired’, I said. 815 more words

Medical Stuff

The Heart Child is 10!

And he turned 10 a month ago! And I have not written a single word since January! Which is very sad. Especially considering what a momentous occasion it was to celebrate an entire decade of Corey’s life. 328 more words

Join Me For a Great Cause

Hi There! I know it has been a while since my last blog. I have been dealing with some personal issues, but I am back with share with you something that is very important for me. 309 more words



Our daughter, Jennifer has Down Syndrome, and today is World Down Syndrome Day.   We are so amazed at all the incredible people and places that now CELEBRATE Down Syndrome.   672 more words

CHD Awareness


This is a blog post about how tired I’m feeling. There, now you know you can either (a) stop reading because you can tell it’s not going to be very interesting or (b) carry on at your own peril – perhaps it will send you to sleep, which might be good if you’re tired as well. 365 more words

Medical Stuff

9 Months Old

It’s hard to believe that our little Super Millie is nine months old already. Time is flying by at an alarming rate.

Health-wise, Millie is doing really well all things considered. 1,162 more words