Tags » Congenital Heart Defect

Back to School, But Not Quite Back to Normal

Have you ever seen a conquering queen returned to her castle? It must look something like Charlotte’s reception at school yesterday. As soon as her classmates saw her turn the corner at the top of the stairs, several girls came running toward her to envelope her in hugs. 306 more words

Ann And Robert Lurie Children's Hospital Of Chicago

The HLHS Dad Goes to Washington (Part 1)

As you may have read in a previous post, I had a very special opportunity to attend the Congenital Heart Legislative Conference in Washington DC on February 25-26.   997 more words

HLHS

The Broken Heart of Paisley Eleanor

Our sweet mini goldendoodle was born with a broken heart. The official diagnosis, a PDA, which had to be repaired immediately to lengthen her life expectancy and enhance her quality of life. 1,531 more words

Blue Ridge Goldendoodle Puppies

Post-Surgery Appointment (#CHDAware), or One More Step Back Toward Regular

It’s hard to believe that Charlotte has been home for nearly a week and that her surgery was two weeks ago. As long as the hospital stay felt at the time, it has faded into memory in some ways. 345 more words

Ann And Robert Lurie Children's Hospital Of Chicago

Up and Down

When we first found out we might be delivering early,  everyone described the Nicu to us as “a roller coaster”. I thought I understood that phrase,  but I actually had no idea what we were in for. 264 more words

NICU

Charlotte's Story: The Road to a Healthy Heart

Sometimes I’m so proud of my kiddo, I could just burst. This is one of those moments. She was asked earlier this month if she would contribute a blog post to “Life Inside Lurie Children’s: The Official Blog of Ann & Robert H. 72 more words

Ann And Robert Lurie Children's Hospital Of Chicago