Tags » CHD

A (Criss Crossed) Heart!

As one who likes to write I find with this post I’m at a loss of words and no place to fully start, so I should just dive in, right? 1,195 more words


Hello Heart World!


Hello Heart World!! This a blog about the my journey, thoughts and ideas of a heart mom. I hope to help one person or give my inside view on what it was  to spend 8 months in the hospital and life with a baby that has had a heart transplant.

Glenn Surgery is Eminant

My son’s Glenn procedure is scheduled for only 10 days from now.

For the first few weeks after getting the surgery date my mind was spinning with trying to figure out what I’d need. 537 more words


One Year

One Year.

One year since we handed you over to a stranger for them to crack your chest open and fix your heart. It makes me shudder to think about it now. 358 more words

Down Syndrome


I think a lot about my purpose now. It was somewhat clear before, but not as deep. Important, but not nearly as moving. I was a wife, engaged in and climbing my way in a demanding, full-time career. 711 more words


I got high in Yellowstone

Sometimes I can’t resist a cheeky post title. The truth is, I climbed a mountain in Yellowstone, and I never would have thought I could. Not three years ago, when I almost died, but really not even before that, when my heart was weak and had a congenital defect I didn’t even know about, in all the years before I almost died, when I thought I was just a wimp with no endurance. 887 more words