Tags » CHD

So That Others Can Be Brave

The day the white-coated specialist announced, “I’m sorry. Something’s wrong with your baby’s heart. She probably won’t live to be born,” was the scariest day of my life. 319 more words

Dear Phlebotomists...

Heart parents, you know this scene: you’re in the hospital with your little one – maybe it’s post-surgery or an admission for something else.  Either way, your child has been fussy or in pain and sleep has been really hard to come by.   1,194 more words

HLHS

Batteries not included

So, I went for my pacemaker check yesterday and ended up staying in hospital overnight!

It happened (vaguely) like this:

I went to the pacing clinic as usual and a nice man started my pacing check, and within a couple of minutes asked me, ‘how have you been feeling recently?’ ‘Very tired’, I said. 815 more words

Medical Stuff

The Heart Child is 10!

And he turned 10 a month ago! And I have not written a single word since January! Which is very sad. Especially considering what a momentous occasion it was to celebrate an entire decade of Corey’s life. 328 more words

Join Me For a Great Cause

Hi There! I know it has been a while since my last blog. I have been dealing with some personal issues, but I am back with share with you something that is very important for me. 309 more words

Health

3 Rays of Sunday Sunshine ~

It is the end of the day.

I look back and sigh.  Was this a Sunday?  In some ways yes, in some ways no.  At least not a Sunday in the ideal of my mind. 2,233 more words

Family Life

Tired

This is a blog post about how tired I’m feeling. There, now you know you can either (a) stop reading because you can tell it’s not going to be very interesting or (b) carry on at your own peril – perhaps it will send you to sleep, which might be good if you’re tired as well. 365 more words

Medical Stuff