Tags » CHD

Heart Appointments- We Have a Date!

Two weeks ago we got a long-awaited phone call from the Children’s Hospital where my son will have his surgery.  I was getting to the point of calling them up myself and asking what the wait was for! 405 more words


North Atlantic Clam That Lives for Centuries Yields Insights on Cardiac Aging | NCCIH

The typical heart in aquatic invertebrate animals such as clams, oysters, and mussels has many strong similarities to the human heart. The Arctica islandica, or ocean quahog, is the longest-living, non-colony-dwelling animal ever identified; so far, the oldest identified specimen survived to age 508 (age is identified by counting shell growth rings).

14 more words
Medical News

Riley's on the Move

It gives us great pleasure to share this little video clip.  Riley now has her own set of wheels and we can’t even begin to explain how much joy and indepence it is giving her.   432 more words

Riley Ann Moss

Talking Through

I don’t know if this happens to anyone else, or maybe it’s just me due to special circumstances, but there are occasional moments that bring back early memories of this heart journey.   1,140 more words


The Exaustion of being Brave

So here is the hard truth, the one that I think sometimes people don’t say. Being brave, having miracle moments, beating the odds, overcoming a traumatic situation are quite possibly the most exhausting moments of your life…ahem…I’m exhausted. 707 more words

Congenital Heart Defect

"Look how far we've come"

For the past few weeks I have heard the kids frequently yell “look how far we’ve come mummy”! Walking along walls, climbing up parks, walks up hills and general journeys spark the excitement of the accomplishment they can physically see. 1,219 more words

Trisomy 18

Ruaírí's Holy Communion

A few of our favourite photographs from today. A special holy communion celebration to my godson Ruairi.  What an amazing day!


Riley Ann Moss