Tags » CHARGE Syndrome

One month - 180 degrees yet again

Tomorrow marks one month since Eva died.

One month since my life changed again. In the last year I have been spun 180 degrees time and time again. 234 more words

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Not "for the best". Never "for the best".

I heard a rumour the other day that made my skin crawl and my stomach lurch

I heard that someone in passing had mentioned that Eva’s death was perhaps “for the best”. 909 more words

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Fugee love

There are so many people I need to thank since Eva has died. This past year since Eva was born I have needed help and support more than any time in my life. 1,588 more words

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Grief is its own master

Grief is a strange thing. Each person experiences it differently and moves through it at their own pace. Even within one person it’s not consistent. From event to event my own grief is different and within the same event it differs too. 867 more words

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Eva spreads awareness

Yesterday an old classmate from journalism school interviewed me about Eva for The Dominion Post newspaper.

He got in touch after seeing her death notice in the paper over the weekend and having a look at the blog. 191 more words

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Hindsight is 20/20

Hindsight is 20/20 right?

There are so many things I wish I could tell this woman in the weeks after Eva was born.

I don’t know if I would have listened, but I would have liked to have tried. 1,265 more words

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Eva's service

It’s the day after Eva’s funeral. The guests have gone. The speeches have been written and read and I am alone for the first time in days. 1,928 more words

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