Blogs about: Total Body Irradiation

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Day 51 Update4 comments

treatingrhys wrote 1 month ago: This was going to be the day 50 update but its taken me so long to write it that we’ve got eve … more →

Tags: Treatment Updates, GVHD., Total Parental Nutrition, YouTube, immunoglobin, Rice Krispies, Toonattik, rice milk, Cornflakes

Signs of engraftment?19 comments

RK wrote 2 months ago: Hi all, We had the good news today (16 days after the transplant) that Roger is starting to produce … more →

Tags: All, cyclosporine, dilaudid, engraftment, hypertension, oxycontin, tacrolimus

Day +12: Resting6 comments

RK wrote 2 months ago: (from Lisa) Hi Everybody, Things are fine here — the tests done over the past few days to che … more →

Tags: All, cool Washington State stuff, Cord Blood, cyclosporine, dilaudid, engraftment, Hutch School, hypertension, Seattle Cancer Care Alliance

Managing Mucositis--three days post transplant10 comments

RK wrote 2 months ago: (Update from Lisa)  Roger’s mucositis has worsened since we last wrote.  At first, he says, … more →

Tags: mucositis, transplant conditioning, University of Washington Medical Center

Unique Chap1 comment

treatingrhys wrote 2 months ago: As you might be aware from chatting with us and some of the earlier posts Rhys is a fairly rare char … more →

Tags: Treatment Updates, acute lymphoblastic leukaemia, bone marrow transplant, neurofibromatosis, GVHD., Radiotherapy, hickman line, CT Scan, Infection

Total Body Irradiation11 comments

RK wrote 2 months ago: It’s Saturday evening in Seattle.  I’m three-quarters of the way through my course of … more →

Tags: All, Cord Blood, transplant conditioning, University of Washington Medical Center

Here we go17 comments

RK wrote 2 months ago: It’s Monday evening in Seattle, the skies are clearing after a long rainy spell, and I’ … more →

Tags: All, Cord Blood, Dasatinib, Hutch School, Hyper CVAD chemotherapy, Seattle Cancer Care Alliance, transplant conditioning, University of Washington Medical Center

Delayed by a Cold Virus10 comments

RK wrote 3 months ago: So, all systems were go until last Friday afternoon when I felt the onset of some very mild hay fev … more →

Tags: All, coronavirus, Hyper CVAD chemotherapy, Seattle Cancer Care Alliance, transplant conditioning, University of Washington Medical Center

Transplant Schedule Firming Up17 comments

RK wrote 3 months ago: Barring any unanticipated delays, I’ll start the conditioning regimen for my myeloablative st … more →

Tags: All, bone marrow biopsy, Cord Blood, Dasatinib, Hyper CVAD chemotherapy, MUGA Scan, Seattle Cancer Care Alliance, transplant conditioning, University of Washington Medical Center

The Months Ahead

treatingrhys wrote 3 months ago: Following our chat with Rhys’ consultant in Bristol on Monday here is our understanding of the … more →

Tags: Treatment Updates, acute lymphoblastic leukaemia, bone marrow transplant, Chemotherapy, Conditioning, Antibiotics, Campath, GVHD., graft vs host disease

Transplant days -3, -2: Total Body Irradiation (TBI)8 comments

Seth wrote 11 months ago: I think my anxiety leading up to this procedure was probably disproportionate to what the actual exp … more →

Tags: Cancer, Leukemia, AML, Moving towards transplant, The Walk, light the night, leukemia and lymphoma society, Radiation, TBI


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