Blogs about: Cystic Fibrosis

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What I've been doing (on the blogosphere)2 comments

brunettekoala wrote 1 day ago: I’ve been working on writing a short series of posts explaining the journey which lead me into … more »

Tags: Travels and News, Blogosphere, Faith, Inspiration

Tomorrow5 comments

Robin wrote 2 days ago: Tomorrow (Friday) we find out about Nick’s cultures and what they plan to do - if anything.  … more »

Tags: Prayer Concerns, Prayer Requests, Bronchoscopy, Cultures, IV antibiotics

Going Home3 comments

Robin wrote 4 days ago: Ok.  He is dressed, he is taking Tylenol, and we are getting our discharge instructions.  So we sh … more »

Tags: Praises, Prayer Concerns, Prayer Requests, Bronchoscopy, CF

In Post-Op Waiting

Robin wrote 4 days ago: We have been moved to post-op waiting.  Here, they monitor him as he wakes up more and is able to m … more »

Tags: Prayer Concerns, Prayer Requests, Bronchoscopy

In the Back with Nick

Robin wrote 4 days ago: Update:  He’s awake and they are trying to get him ready to move out to the post-op waiting. … more »

Tags: Prayer Concerns, Prayer Requests, Bronchoscopy, mucous

What the Doc Said1 comment

Robin wrote 4 days ago: The doctor has already come out to tell me what they saw.  He said that there had been some changes … more »

Tags: Prayer Concerns, Prayer Requests, Bronchoscopy

Going to Sleep3 comments

Robin wrote 4 days ago: They just came and walked him back.  I accessed his port last night so they didn’t have to w … more »

Tags: Prayer Concerns, Prayer Requests, Bronchoscopy

In Pre-op

Robin wrote 4 days ago: Answering all the questions - waiting for anesthesia. … more »

Tags: Prayer Concerns, Prayer Requests, Bronchoscopy

Laid off1 comment

Salty wrote 5 days ago: A lot of speculation has come about with my recent lay off. It is quite a coincidence of how I was … more »

Tags: Life in general, Challenges, lay off, laid-off, Lessons Learned

Time for Bronchoscopy5 comments

Robin wrote 5 days ago: Chapel Hill just called and said that Nicholas’ bronchoscopy has been scheduled for 9:30 am to … more »

Tags: Prayer Concerns, Prayer Requests, Bronchoscopy

Email From the Doctor9 comments

Robin wrote 1 week ago: We finally received an email from Nicholas’ doctor.  He is going to try to schedule a broncho … more »

Tags: About CF, Prayer Concerns, Prayer Requests, Bronchoscopy, CF

Update on Amie

Robin wrote 2 weeks ago: Mama posted this as a comment on a previous post, but I thought I would share it as a post sin … more »

Tags: Family, CF, Amie, Praises, Miracle

A friend in need2 comments

Salty wrote 2 weeks ago: I haven’t had a moment to think about posting more today.  Like a hyperactive bunny rabbit (o … more »

Tags: Support, Donate Life, end stage cystic fibrosis, friends of pepe, Organ Transplant

Clinic Update2 comments

Robin wrote 2 weeks ago: The latest:  So we are eating lunch and then headed down to x-ray.  We have signed the consent for … more »

Tags: Praises, Prayer Concerns, Prayer Requests, CF, Lung Function, Weight

Our God is an Awesome God!7 comments

Robin wrote 2 weeks ago: I just received a phone call from mama - I didn’t want to answer the phone.  All I can say is … more »

Tags: Family, CF, Miracles, Prayer Requests, Prayers, thankful

Our God is an Awesome God!7 comments

Robin wrote 2 weeks ago: I just received a phone call from mama - I didn’t want to answer the phone.  All I can say is … more »

Tags: About CF, Praises, Prayer Concerns, Prayer Requests, Amie, Answered prayers, CF, Prayers, thankful

Update on Amie

Robin wrote 2 weeks ago: Mama called me a little while ago.  We are not going to Duke tomorrow.  They are going to take Am … more »

Tags: Family, Amie, CF, Pain, Peace, Prayer Requests

Update on Amie2 comments

Robin wrote 2 weeks ago: Mama called me a little while ago.  We are not going to Duke tomorrow.  They are going to take Ami … more »

Tags: About CF, Prayer Concerns, Prayer Requests, Amie, CF, Family, Love, Pain

How God Prepares Us3 comments

Robin wrote 2 weeks ago: For those of you who visit What’s Up With Nick, this is going to be a duplicate post.  I thou … more »

Tags: Family, cysticfibrosis, Prayer Requests, Growing Up


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