Blogs about: 25 Me Group

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NHS services inquiry: Will the APPG reconsider?

meagenda wrote 2 hours ago: NHS services inquiry: will the APPG reconsider and agree to extend the deadline for responses? The 2 … more →

Tags: APPG on ME, CBT, CBT/GET, CFS Clinics, CFS Clinics Inquiry, judicial review, ME in Parliament, NHS service provision inquiry, NICE CFS/ME guideline

25% M.E. Group response to draft TOR for APPG Inquiry into NHS service provision

meagenda wrote 9 hours ago: Following enquiries, this morning, the 25% M.E. Group has confirmed that the Group did submit a resp … more →

Tags: APPG on ME, CBT, CBT/GET, CFS Clinics, CFS Clinics Inquiry, judicial review, NHS service provision inquiry, Nice, NICE CFS/ME guideline

Constitution of the APPG on ME: a clarification

meagenda wrote 1 week ago: Clarification regarding membership of the APPG on ME May be reposted I’d like to correct a misconc … more →

Tags: AfME, Action for ME, APPG on ME, AYME, Brame, ME Association, ME in Parliament, ME Research UK, rime, The Young ME Sufferers Trust

The Countess of Mar's meeting with ME patient organisations

meagenda wrote 1 week ago: [This post is an updated version of a posting first published on 2 November.] The Countess of Mar … more →

Tags: APPG on ME, rime, ME Association, Dr Ian Gibson, AYME, AfME, Action for ME, Brame, The Young ME Sufferers Trust, ME Research UK

Documents, NICE CFS/ME Judicial Review: M Williams

meagenda wrote 2 weeks ago: Margaret Williams has issued a series of documents created specifically for the NICE Judicial Review … more →

Tags: CBT/GET, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, ME Association, UNUM, judicial review, ME in the media

NICE Judicial Review documents: Margaret Williams

meagenda wrote 2 weeks ago: Margaret Williams has issued a series of documents which have been created specifically for the NICE … more →

Tags: ME Association, Nice, NICE CFS/ME guideline, CFS Clinics, MRC, judicial review, CBT/GET, ME events, ME Research UK

From the literature: ten reasons not to implement the NICE Guideline on "CFS/ME"

meagenda wrote 3 weeks ago: As a follow up to the 27 October article from Margaret Williams ( see: Prejudice-based Medicine? R … more →

Tags: APPG on ME, ME Association, NICE CFS/ME guideline, AfME, Action for ME, CFS Clinics, Brame, WHO (World Health Organization), judicial review, CBT/GET

New YouTube channel: action4change4me

meagenda wrote 3 weeks ago: New YouTube Channel  action4change4me Ciaran Farrell 24 October 2008 I have finally got around to … more →

Tags: APPG on ME, rime, ME Association, ME in Parliament, AYME, AfME, Action for ME, ME in videos, ME Observatory, The Young ME Sufferers Trust

NICE legal challenge: Launch of supporters' website

meagenda wrote 1 month ago: NICE CFS/ME Guideline legal challenge supporters’ website for information, updates and appeals … more →

Tags: NICE CFS/ME guideline, CFS Clinics, ME in the media, CBT, judicial review, CBT/GET, ME events, PACE Trials

Position on RSM Bristol conference: TYMES Trust, 25% M.E. Group

meagenda wrote 2 months ago: ME patient organisations’ positions on the RSM’s regional conference on “CFS … more →

Tags: CBT/GET, AfME/Action for ME, NICE CFS/ME guideline, Prof Peter White, Royal Society of Medicine, ME Association, Sir Peter Spencer, The Young ME Sufferers Trust, AYME

Positions on RSM Bristol conference from TYMES Trust and 25% M.E. Group

meagenda wrote 2 months ago: Responses from ME patient organisations on their positions on the RSM’s regional conference o … more →

Tags: ME Association, NICE CFS/ME guideline, AYME, ME in children, CBT, Royal Society of Medicine, The Young ME Sufferers Trust, ME events, Invest in ME

Bristol RSM Conference: Where's the action?

meagenda wrote 2 months ago: Bristol RSM Conference: Where’s the action? Before the controversial RSM’s London CFS Co … more →

Tags: CBT/GET, AfME/Action for ME, NICE CFS/ME guideline, Prof Peter White, Royal Society of Medicine, ME Association, The Young ME Sufferers Trust, AYME, Invest in ME

25% ME Group response: Redditch Standard

meagenda wrote 2 months ago: http://www.redditchstandard.co.uk/comment55884.html Suicide of ME mum - lesson to be learnt 11 Septe … more →

Tags: Nice, NICE CFS/ME guideline, CFS Clinics, ME in the media, CBT, CBT/GET

Summary MEA Board Meeting: 2 September 2008

meagenda wrote 2 months ago: Ed: Note this is a summary of the Board meeting prepared by CS and not the official minute Summary M … more →

Tags: APPG on ME, APPG on ME Minutes, APPG on ME Agenda, AYME, AfME, Action for ME, DWP, MRC, judicial review, Royal Society of Medicine

Greg Crowhurst: Spinning the web, John Sayer, MES-N

meagenda wrote 3 months ago: Below I publish a statement by John Sayer, Chair of M.E. Support-Norfolk, previously published by th … more →

Tags: ME in videos

Thanks to M.E. Support - Norfolk

meagenda wrote 5 months ago: Thanks to M.E. Support - Norfolk M.E. Support - Norfolk group mails out an A5 monthly newsletter cal … more →

Tags: CBT/GET, AfME/Action for ME, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, Royal Society of Medicine, Sir Peter Spencer, The Young ME Sufferers Trust, UNUM

Stand back a minute! by Greg Crowhurst

meagenda wrote 6 months ago: Reference: Letter FROM the Royal Society of Medicine Help ME Circle, 13 May 2008 - See Co-Cure:  ~j … more →

Tags: Nice, NICE CFS/ME guideline, Institute of Psychiatry, AfME, Action for ME, CFS Clinics, MRC, UnumProvident, UNUM, Professor Peter White, WHO (World Health Organization)

25% ME Group Press Release: RSM CFS Conference

meagenda wrote 6 months ago: In April, the 25% ME Group issued a Press Release in respect of their position on the Royal Society … more →

Tags: CBT/GET, AfME/Action for ME, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, Royal Society of Medicine, Sir Peter Spencer

RiME issues position statement on RSM

meagenda wrote 7 months ago: Paul Davis of RiME has provided me with the following position statement on the RSM CFS Conference … more →

Tags: CBT/GET, AfME/Action for ME, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, Royal Society of Medicine, ME Association, Sir Peter Spencer, The Young ME Sufferers Trust


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